I started my treatment yesterday. Came thru with flying colors! No side effects, just a little headache at night but nothing so bad that I couldn't handle it. C came with me so that I wouldn't have to handle sitting by myself for 2 hours! It was nice having him there with me. We watched TV, talked and laughed. After 25 years of marriage, all it's ups and downs, I love when it's just the 2 of us talking and laughing, knowing that he is right by my side, thru all this crap!
Dr. T stopped in while I was having the infusion and told us that new numbers came out on the side effects for tysabri and that they are saying that now patients should only take it for 2 years, take a 6 month break, then resume, but since I am only just starting, we'll deal with that when it comes.
Told him how I did this past month with no meds, feeling like crap and symptoms being more pronounced, he said that's normal and hopefully now that I've started tysabri, it should get more tolerable! Just what I need, more of that same ole some ole!
Well, that's it for today. Tomorrow is Halloween and I'm hoping since it's a Saturday maybe I'll actually get some trick or treaters! :)
Remember, always laugh out loud, love deeply, and dance as if no one is watching!
Caregiver
10 years ago

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