Sunday, June 14, 2009

So this is how i figure I can write down how I'm feeling on a day to day basis. I live each day with Multiple Sclerosis. It's not easy. Not knowing from one day to the next how I'm gonna feel is depressing. There are some days I feel like superwoman and can get almost anything done. Then there are the days I can hardly move, but I go on because that is what I've always done. Then I pay for it later! :( My body usually tells me when it's had enough. It just shuts down. Then I'm good for S***. So anyhow, I wasn't feeling particularly well in may so I called my neuro to make an appointment. After seeing him, he ordered MRI's of brain, neck and spine to see if anything new had developed. Three weeks later...he tells me that all is good. No new lesions and no inflammation. Yeah, but why do I feel so crappy? He adjusted my meds and said if that didn't work, we'll try something else. So I go home feeling all good, and the Dr. calls me 3 hours later. There are new lesions, and they are inflamed! :( He's so sorry he missed them, and that his nurse is setting up for solumedrol treatments! Great so not only do I have to have my weekly shot now I have to have steroid treatments for 1 hour a day once a month! FML. Time to take out the BIG clothes again. I just don't understand this disease sometimes. I do everything the doc tells me too and still it progresses. OK enough.

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