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I can't believe it's been a week! It's been an exciting one! After my treatment last week and feeling like I was flying on energy, C came home on Wed and said that since his boss didn't need him on Thurs & Fri, and he wasn't scheduled to work over the weekend, why didn't he utilize the condo in Palm Beach and take me away for a few days. Well, Thurs morn he got up, called the kennel and they were able to take Jack for the weekend,
and I went on the Internet and got us a super cheap flight and off we went. We flew out of the rain and into 5 wonderful days of relaxation and sun. We also saw 2 movies, (which we never do at home) The hangover, which was hysterical and Pelham 123. I love John Travolta! He played such a sicko! We layed by the pool and went shopping. All in all it was a great time. The only thing that would've made it better was if I had been able to see my brother, but he had just come back from a business trip and I didn't want to take him away from his wife. Although he probably would've come or I go to see him, I knew how much C misses him when he is away.
Then back to reality...when we landed on Monday afternoon, guess what? It was raining!
But today the sun is out, got my shot and so far feeling good. :)
I got everything that needed to be done yesterday. Even had my mani/pedi but was there for almost 2 Hours! talk about being relaxed! My nails had to be soaked due to the wraps being on for almost 5 months! They started to lift & she asked if I had time so what the heck. It was the best 2 hours I've had in a long time, plus C had to take my car today, so I'm glad that I was able to accomplish so much. On an MS note - feeling a little better today. Not so much of a energy boost. Didn't get to sleep until 1 am but slept til 6...so not to bad. Bones are a little achy and stiff but I'm hoping with time the steroids will help. Spoke with S yesterday, having a great time on her little mini vacay with her girls. She sounded happy and I'm glad. I love that girl so much, it breaks my heart to see her down. When she smiles and laughs, my heart leaps! <3. Well, since I have no car, I guess I'll suit up and lay in the sun ( even though the heat's not good for me!) but I gotta work on this tan so it looks like I went on a vacay!
Sleep is highly overrated! By time I actually feel asleep it was around 5am and then I only slept til 7:15. Boy is it gonna be a long day with so much to do! Hopefully my body will let me get some things done and the rest I'll just save til I'm up to it. I think i'll treat myself to a mani and pedi. That will give my body time to just relax whil I'm being pampered!
Now I know why I hate steroids! It's 1:10 am and I can't sleep. I feel like I just drank 3 cups of coffee and am pacing back and forth. C keep s telling me to come to bed and I tried but all I did was fidget and the man has to work in the morning so I got back up. Now I don't know what to do with myself!
Well, Went for my first steroid treatment today. Forgot the funny taste that you get. All I want to do is eat ice cream and chocolate. OOH fat clothes here I come. LOL Also forgot the energy boost it gives me. Feel like I could go all day. My husband said since I was feeling so good I should scrub all the floors! told him I'm feeling good but not that good! Til tomorrow - remember laugh and laugh deeply.
So today I'm off for my shots. One is a regular weekly thing, the new one is going to be every other month. (So I guess I'll only gain 1/2 the weight!) I just hope this cocktail works! Let you know more later.
So this is how i figure I can write down how I'm feeling on a day to day basis. I live each day with Multiple Sclerosis. It's not easy. Not knowing from one day to the next how I'm gonna feel is depressing. There are some days I feel like superwoman and can get almost anything done. Then there are the days I can hardly move, but I go on because that is what I've always done. Then I pay for it later! :( My body usually tells me when it's had enough. It just shuts down. Then I'm good for S***. So anyhow, I wasn't feeling particularly well in may so I called my neuro to make an appointment. After seeing him, he ordered MRI's of brain, neck and spine to see if anything new had developed. Three weeks later...he tells me that all is good. No new lesions and no inflammation. Yeah, but why do I feel so crappy? He adjusted my meds and said if that didn't work, we'll try something else. So I go home feeling all good, and the Dr. calls me 3 hours later. There are new lesions, and they are inflamed! :( He's so sorry he missed them, and that his nurse is setting up for solumedrol treatments! Great so not only do I have to have my weekly shot now I have to have steroid treatments for 1 hour a day once a month! FML. Time to take out the BIG clothes again. I just don't understand this disease sometimes. I do everything the doc tells me too and still it progresses. OK enough.
